tag:blogger.com,1999:blog-118487882011-07-14T19:48:18.927-05:00Acute Respiratory Distress Syndrome (ARDS) affects over 150,000 people in the United States each year with half of those people dying from this terrible syndrome. Worldwide, the numbers abound. Share your thoughts with us on a more personal level.ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.comBlogger821100tag:blogger.com,1999:blog-11848788.post-26051820156540603142007-08-11T20:47:00.000-05:002007-08-11T20:55:25.854-05:00

Please sign up for the Hike for Lung Health! When you sign up online, ARDS Foundation is recognized. Join one of our teams, start your own in honor or memory of a loved one, but 'Hike for ARDS and Lung Health!'You can initially sign up with just the $10 registration fee and later add to it or get others to sponsor you.Virtual walkers are asked to register as an official walker so they may receive

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1152546040123318192006-07-10T10:37:00.000-05:002006-07-10T10:40:40.146-05:00

On Sat., August 5, 2006, the ARDS Foundation will host its 4th annual "United in Hope Mini-March" benefit at Flick Park, 3600 Glenview Road Glenview, IL from 10 AM-2 PM.ARDS Foundation is an all volunteer organization supported by physician specialists from around the nation. Events will include a mini-walk, and other fun activities for adults and children alike. There will be a raffle and silent

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1152544593063640032006-07-10T10:13:00.000-05:002006-07-10T10:16:33.063-05:00

www.chaseborders.comChase was in an accident when he crashed his dirt bike. Shortly after, he was diagnosed with ARDS and it has been a roller coaster ever since. Check out his site and support him with thoughts and prayers.

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1152544350387974742006-07-10T10:03:00.000-05:002006-07-10T10:13:30.460-05:00

There is an ARDS benefit to raise funds to Johns Hopkins for medical research of ARDS. The link the the site is at:www.ardsride.com

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1138068796150076102006-01-23T20:08:00.000-06:002006-01-23T20:13:16.166-06:00

Local Marine takes turn for worseTWIN FALLS -- The Marine seemed to be doing so well Friday night.Then on Saturday morning, Marine Cpl. Travis Greene took a turn for the worse.His parents, Terry and Sue Greene, were in their motel room near the National Naval Medical Center in Bethesda, Md., Saturday when their cell phone rang a little after 7."He's had a real turn for the worse," Terry Greene

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1137809583928348902006-01-20T20:10:00.000-06:002006-01-20T20:13:03.930-06:00

Hantavirus letter to the Editor, Chicago TribuneLast week, I sent a letter to the editor in response to a few writers belief that mice (not pets) were harmless, and that we should all live in harmony with them...Here is the letter that I wrote:In response to the letters from January 9, 2006, Voice of the Peopleregarding your "Mouse Wars" article, to those writers who suggestthat 'mice are

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1136349812028726822006-01-03T22:38:00.000-06:002006-01-03T22:43:32.056-06:00

This little girl who was in a house fire right before Christmas (it was all over the news here in Chicago since two police officers arrived and pulled the three people out of the house)... well, when I got the email from a relative, I did a search and also learned that the little girl's father died last Thursday.The little girl, Brittany, now has ARDS.I am still waiting to hear back from the

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1134240185445661932005-12-10T12:32:00.000-06:002005-12-10T12:43:05.466-06:00

I have not posted in quite a while, but then again, nobody else has either!On Halloween, I broke my foot! But before I went to the ER, I did not think it was hurt that bad, so I walked on it for three hours trick or treating with my kids. At the end of that time, when I got in my car to drive home, I knew I had seriously hurt my food. I could not tolerate the weight of the ice pack, and had to

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1131425533376362542005-11-07T22:48:00.000-06:002005-11-07T22:52:13.393-06:00

ARDS by numbers... almost makes you gasp!Information about Acute Respiratory Distress SyndromeA. ARDS presents within 12-24 hours of antecedent event B. ARDS patients intubated within 72 hours in 90% cases C. High mortality rate (ICU: 37%, overall: 42%) D. Predictors of better prognosis1. Those who survive first 2 weeks have better prognosis 2. Age under 55 years3. Trauma related ARDS E.

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1129846630836857422005-10-20T17:14:00.000-05:002005-10-20T17:17:10.846-05:00

Acute Lung Injury Mortality Is 4-Fold Higher Than That From Heart Attack and Comparable to Breast Cancer and HIV, According to an Article Published in Today's New England Journal of Medicine Thursday October 20, 9:55 am ETSEATTLE, Oct. 20 /PRNewswire/ -- Acute Lung Injury (ALI) is responsible for 74,500 deaths each year in the United States.Acute Lung Injury (ALI) strikes more than 190,000

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1129208235615739502005-10-13T07:53:00.000-05:002005-10-13T07:57:15.616-05:00

Toni forwarded this really funny email to me; since today is a day of fast, I shall share it... must keep busy and ingore those hunger pains!For those of you who have been searching for a greater understanding of Jewish holidays major and minor, I think you will find the explanation below most enlightening:Jewish HolidaysAs a general principle, Jewish holidays are divided between days on which

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1129207566302146212005-10-13T07:34:00.000-05:002005-10-13T07:46:06.310-05:00

Yom Kippur is today, actually it began at sundown last night. Yom Kippur is the Day of Atonement."It is a day set aside to "afflict the soul," to atone for the sins of the past year. In Days of Awe, I mentioned the "books" in which G-d inscribes all of our names. On Yom Kippur, the judgment entered in these books is sealed. This day is, essentially, your last appeal, your last chance to change

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1127529395135410842005-09-23T21:25:00.000-05:002005-09-23T21:36:35.146-05:00

Just wanting to send more prayers to the Gulf; reminds me of Florida last year. I sure hope it stops after 'Rita'Just found an article that discusses ARDS and the issues that the Terri Schiavo case raised.It is interesting because it addresses what I fear will happen any time a patient is intubated. All of those people who decry the horrible quality of life one will have on a vent, assuming the

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com5tag:blogger.com,1999:blog-11848788.post-1125502268061191672005-08-31T10:28:00.000-05:002005-08-31T10:31:08.073-05:00

Please everyone keep those on the Gulfcoast in your thoughts and prayers. I have several friends in Gulfport, MS that I have yet to hear from. As I am in the insurance dept. of my company, I will be going there as soon as airtravel permits. I can't imagine the devestation that I am going to see. I have been to Gulfport 3 times already this year. It was such a beautful area, and now most of

Paula Bhttp://www.blogger.com/profile/05730719130814509523noreply@blogger.com3tag:blogger.com,1999:blog-11848788.post-1125463451438375782005-08-30T23:41:00.000-05:002005-08-30T23:48:09.330-05:00

Toni's sister had triplets, delivered early, and then she needed to have a torn aorta repaired.A couple of days after the birth, one of the boys, Joseph, had to undergo emergency surgery to repair a hole in his colon.Here is a link with more info and articles from the newspapter: http://www.ardsil.com/cgi-bin/ubbcgi/ultimatebb.cgi?ubb=get_topic&f=5&t=000116

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1125339094711980512005-08-29T13:06:00.000-05:002005-08-29T13:11:34.726-05:00

I went to the Party Store today to get my youngest a pinata, and some other stuff for her birthday party, and we are in line waiting to pay, behind two others.This older woman right in front of us then turns to me and says, "I am going to take a long time, I have a return."There are only two employees in the entire store; one is doing some balloons and the other is at the register, and on a

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1124722007280597882005-08-22T09:38:00.000-05:002005-08-22T09:46:47.293-05:00

Yes, the dreaded oreo is back again on the front page of my daily paper. They have a photo with a person dressed up in as a huge oreo...I just cannot explain my insatiable desire to run to Happy Foods and get myself a package! (kidding)I admit, I have not read the articles (who has the time! I need to read some real news stories) but I would think that more people would go out and grab a

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1124648863639592812005-08-21T13:19:00.000-05:002005-08-21T13:27:43.653-05:00

Quite obviously, there is nothing going on in this world for newspapers to highlight, especially on the front page of their Sunday papers.Today, the Chicago Tibune has an in depth, three part, front page story about:"Craving the cookie; The brain is wired to love sweets, but are they addictive?America’s iconic cookie captures the nation’s burgeoning dietary dilemma."http://www.chicagotribune.com

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1124592674165002902005-08-20T21:46:00.000-05:002005-08-20T21:51:14.170-05:00

What is the deal with SPAM? it runs in cycles, doesn't it? All weekend, I have received probably close to a hundred SPAM emails for different TV show DVDs. For a while it will be viagra, then valium, then enhancement items... But always those phishing emails, trying to get my personal info... ebay, or some bank...It is, too say the least, annoying. I just send them directly to my SPAM folder

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1124205216374308572005-08-16T10:08:00.000-05:002005-08-16T10:13:36.390-05:00

I forgot to post this the other day, but at our mini-conference, Dr. Michael Moore said that there are as many a 700,000 ARDS cases in the US each year!After he spoke I asked him, did he mean in the world? What was this that I had heard all the time about 150,000? I said that I always thought that 150,000 was a low estimate, but 700,000?He said that the research shows an incidence the equals

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com2tag:blogger.com,1999:blog-11848788.post-1124204183530513022005-08-16T09:46:00.000-05:002005-08-16T09:56:23.546-05:00

reading the chicago tribune this morning and I learned of another disorder, addiction as they state in their headline! "Sun worship could be shaded by addiction"It is the dreadful sun worshipper addiction... I wonder what the DSM-IV says about this...What a relief; though I have the caffiene addiction, I gave up my sun addiction years ago!

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1124161617861654982005-08-15T22:03:00.000-05:002005-08-15T22:06:57.873-05:00

http://www.imagestation.com/album/pictures.html?id=2122291202&slideshow=1we will get more photos soon and I video taped the conference and our webmaster is going to put it on dvd! but it is not prefessional so if anyone gets it and feels a bit 'blair witch' don't bitch & moan to me... I did my best, no tripod, and it was a long day.

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1124109590495141662005-08-15T07:37:00.000-05:002005-08-15T07:39:50.503-05:00

Today's burning questions...yes, the elusive face is gone again. (checked the site it came from and it is down... again :((

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1124108412811049732005-08-15T06:58:00.000-05:002005-08-15T07:20:12.840-05:00

I think the mini conference was so valuable, in terms of learning about ARDS, having questions answered and the opportunity to ask questions... After facing ARDS, whether it be with a family member or one's self, how often do you have questions that you think about later, or lingering ones that never seem to get answered?I will post the synopsis that I wrote for the site, but two things really

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1124036813858674202005-08-14T10:51:00.000-05:002005-08-14T12:34:20.466-05:00

Just wanted to talk about the 'March for Miracles'I wish everyone could have been there with us! It was our third year of doing this event, and I think it was the best yet.Sadly, after a summer of sun and heat, we did have a few drizzles every so often, but it was not too hot, so that was great.We began our day at 6:30 AM, Paula and I, that is... (and my daughters...) but someone else had the

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1123807357137164342005-08-11T18:54:00.000-05:002005-08-11T19:42:37.146-05:00

Was watching the news today and learned that I am 'mentally ill'Yes, they have changed things to include caffeine addiction to the list of mental illnesses!Caffeine-Related Disorder is what it is called. Here is what one site says about it:LUDICROUS DIAGNOSIS. Psychiatrists base their diagnosis off of a book known asthe Diagnostic and Statistical Manual (DSM). This book contains

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com2tag:blogger.com,1999:blog-11848788.post-1123618663657755532005-08-09T15:14:00.000-05:002005-08-09T15:17:43.666-05:00

Just a little...I was supposed to drink water at 12:35 pm but at 12:25, I could stand it no longer!Still, I waited (patiently-NO WAY) for the 2:35 hour...At 2:15, I could wait no more. I got myself a nice, ice cold diet Coke and was in heaven.I did following the eating dictate; waited until after 2:35 pm...Have a spliting headache and the leads are quite annoying, itchy.Can't wait to get this

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com2tag:blogger.com,1999:blog-11848788.post-1123607277155348562005-08-09T11:58:00.001-05:002005-08-09T15:20:38.933-05:00

OK, not exactly in my belly but I went in this AM for a capsule endoscopy this morning.What is that? A very interesting and relatively pain free procedure.However, we did not book the procedure until yesterday morning. And a little after 10 AM, the woman told me that I had to stop eating at noon and take a (yuck) laxative (two actually) at the same time.Since I had not yet eaten, I rushed to get

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1123158380600627582005-08-04T07:25:00.000-05:002005-08-04T07:26:20.606-05:00

It is hot in Chicago, day after day, after day...How is it by you??

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com3tag:blogger.com,1999:blog-11848788.post-1121723559603435392005-07-18T16:48:00.000-05:002005-07-18T16:52:39.603-05:00

In relation to the walk/conference, we hope that if anyone really wants to attend these exciting events, we will do whatever we can to help to make this happen...Maybe you can get here, but cannot afford to pay for the walk or conference. If this is the case, let us know. Maybe you can get donations for the walk, but still are having trouble making attendance to this event possible due to some

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1121723279165227952005-07-18T16:41:00.000-05:002005-07-18T16:47:59.166-05:00

http://www.emediawire.com/releases/2005/7/emw257747.htmARDS Foundation www.ardsusa.org “March for Miracles” 2005The ARDS Foundation is hosting a benefit to raise funds for education, research and public awareness of acute respiratory distress syndrome (ARDS) at the Chicago Botanic Gardens on August 13, 2005. Also on August 13, 2005, the ARDS Foundation is offering their first ARDS mini-conference

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1121722850891081312005-07-18T16:39:00.000-05:002005-07-18T16:40:50.900-05:00

Yippi! I will post later, just got back from vacation, much needed. I should probably change the face, but I am still 'Tired!' But at the same time, well rested. Lots of doctor appointments in my future. But maybe some answers, too!

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1121133672540368452005-07-11T21:01:00.000-05:002005-07-11T21:01:12.556-05:00

Today I received a notice from what appeared to be from Paypal which looked very formal. I was told that my account would be limited because several different computers had tried to use my login/password. Well, needless to say, since I've never used Paypal and never had an account I became very suspicious. I went to www.paypal.com and forwarded the email I had received (which also had a link

Louisehttp://www.blogger.com/profile/13423890862875510777noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1120620043278300382005-07-05T22:19:00.000-05:002005-07-05T22:20:43.276-05:00

Just checked the face site again, and it is still gone! Will have to find another one. And to think, I was going to change the face to a happy one!

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1120619922496854702005-07-05T22:11:00.000-05:002005-07-05T22:18:42.500-05:00

Going on a much needed vacation tomorrow. Boy do I need it!But I will be checking in, online. I see how boring the blog is, especially when I read some of these people like the guy who was just arrested, Joseph Duncan. One might feel better if he was the only one out there, but of course, there are too many. Not just fantasy what they profess, but the reality of their lives. Being a criminal

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1120402687357193022005-07-03T09:54:00.000-05:002005-07-03T09:58:07.370-05:00

A way to thank those who risked their lives for usPublished July 3, 2005There will be much discussion about what we've lost, and who we had been and what we're in danger of becoming. All of this will be bound up in the upcoming "battle" over Supreme Court nominees."It will be a vicious battle," said a reporter on TV, and I watched the politicians--liberal and conservative senators--circling over

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1120360929714002082005-07-02T22:12:00.000-05:002005-07-02T22:22:59.923-05:00

feel so bad about the loss of young Kaitlan; makes me hate ARDS more. I feel usually that things happen for a reason, but in life, there is not a single good reason I can think of for something like this.learned I have low platelets, on top of some really high thyroid levels, and a low hemoglobin... still, I am going on vacation with more energy than I have had in the last year...The face on the

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1120223203620103842005-07-01T08:05:00.000-05:002005-07-01T08:06:43.620-05:00

http://www.ardsil.com/cgi-bin/ubbcgi/ultimatebb.cgi?ubb=get_topic&f=10&t=000053

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1120223109908046092005-07-01T08:04:00.000-05:002005-07-01T08:05:09.913-05:00

less than three days in a regular hospital room is over ten grand! ouch!

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1119929705707265322005-06-27T22:26:00.000-05:002005-06-27T22:37:53.446-05:00

went back to my rheumotologist today and the first thing that she said was that I definitely do not have lupus. Good news. Then, as we continued our conversation, the nurse brought in the last of my blood test results. She looked at the paper and it was as though it all made sense to her. She pointed to my very, very high thyroid levels, and said, "This is why..."She went out of the office to

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1119818319962002402005-06-26T15:38:00.000-05:002005-06-26T15:38:39.980-05:00

ARDS Blog As an Ards survivor, this heat wave is certainly not doing me any good. Does the heat/humidity affect other survivors such as myself? I guess I can't be pleased because the cold wind/snow does almost the same.

Louisehttp://www.blogger.com/profile/13423890862875510777noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1119412524338365872005-06-21T22:52:00.000-05:002005-06-21T22:55:24.343-05:00

The ARDS experience is one that no one or no family should ever experience.. I dont get much time these days to post or check in at the Ards Foundation but just wanted to remind those who would like to share information that they can email me anytime trock1313@OPTONLINE.NETIf I can answer questions or share your tears I would be more than happy to help.. I would be even happier if we didnt need

ToniRockhttp://www.blogger.com/profile/07715305614217316556noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1119392449581680912005-06-21T17:18:00.000-05:002005-06-21T17:20:49.586-05:00

went to the doc today to get a CBC; make sure I am keeping the blood they gave me. My other tests all came back fine... I have no good veins left so I better be fine! Will decide if I am ready to change the face again, but still am a bit sleepy!

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1119176335587775382005-06-19T04:40:00.000-05:002005-06-22T01:52:01.713-05:00

While in the hospital, my blood test indicated http://www.neutropenia.ca/about/index.html neutropenia which indicates a susceptibility to infections and precautions need to be taken, ie gloves and masks.Immediately, masks were brought to my family... signs were posted on my door. the beautiful roses my girls brought me were removed from my room. Sounds like the hospital was on top of

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1119173232062200372005-06-19T04:22:00.000-05:002005-06-19T04:27:12.063-05:00

but I cannot change it to a really happy one until I know what caused my decline! To be sure, I am feeling much better and stronger than I was, but hey, walking around without essential red blood cells did a number on me. Looking beck, even just to the ATS conference last month, it baffles me how I was able to go, function, and even speak cohesively given what I know now. Later this week, I am

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1119105436447293172005-06-18T09:26:00.000-05:002005-06-18T09:37:16.453-05:00

After spending a few days in the hospital, I am home and feeling much better. I received four units of blood, but they still are not sure where I am bleeding from, or if I am just not absorbing iron or what... But I will say this... I have felt like crap for about a year, really, really crappy for the last six months. And in that time, I have been to four doctors for various things, and told

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1118864583288490572005-06-15T14:38:00.000-05:002005-06-15T14:43:03.293-05:00

They finally called to admit me! argh... most of the day is gone. I am very weary of hospitals after all I have been through. I am going to watch them like a hawk

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1118853769624347502005-06-15T11:40:00.000-05:002005-06-15T11:42:49.626-05:00

I am going to go to the hospital sometime today. Repeat blood work indicates very low hemoglobin. Hopefully I will be out in twenty four hours... That is my plan... is it their plan, I do not know. When I get out, I promise I will change the face on the blog! Assuming that I am feeling better! talk soon!

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1118788682954322802005-06-14T17:25:00.000-05:002005-06-14T17:40:53.843-05:00

have not posted in a while and hoped to post more than I have been. I think I mentioned in an earlier entry that this last year, I have been feeling sort of crappy... The last year, bad, but the last six months, really struggling with lack of energy and muscle weakness. And all sorts of other weird stuff... itchy (really itchy arms) with no real rash except the one I create from scratching!

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1118403182614788922005-06-10T06:26:00.000-05:002005-06-10T06:33:02.620-05:00

I have spent the last two hours or so reading a story of courage, and dispair. Dylan Crane, a thirteen year old boy from Florida, was diagnosed with cancer. Dylan decided to document his struggles on his video camera. He won a local award and was going to see if he would win the national competition in October, but he never made it to that event. He passed away on June 8, 2005. Here are two

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1118070269702067092005-06-06T10:00:00.000-05:002005-06-06T10:04:29.713-05:00

Well, here it is, June again, and once again, father's day comes on June 19th.Not sure how many of you know this, but Marybeth, my sister who lost her battle to ARDS was born on June 19th, and I lost my dad 9 months after my sister, so when June 19th is also father's day, it is a very hard day for my family. I remember the first year they were both gone, Father's day was also on June 19th.It has

Paula Bhttp://www.blogger.com/profile/05730719130814509523noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1117923934707736212005-06-04T17:20:00.000-05:002005-06-04T17:25:34.710-05:00

sorry... have not blogged in a bit. Had my ten year ARDS anniversary, June 2, 2005. Have been feeling less well than in previous years. Went to the doctor and I was told I have a slightly elevated ANA. Don't know if that means anything when you consider my low IgG and low IgA but they are all immune related. Going to the doc in a little over a week. In serious need of more energy and less

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1117226264255355312005-05-27T15:32:00.000-05:002005-05-27T15:37:44.260-05:00

The ARDS Foundation has added a chatroom to the website on a trial basis. We will see if it is used on qa regular basis and if there is no objectionable conversations, and if successful, it will remain.Currently, no registration is required. We will review that as well from time to time.A disclaimer will be added as well, and that disclaimed is copied below the links:You can access it from this

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1116988899745305612005-05-24T21:35:00.000-05:002005-05-24T21:41:39.746-05:00

The ATS conference is almost over; it has, as usual, been a wonderful experience and many more medical professionals were made aware of the ARDS Foundation and the services that we provide. Tomorrow, I am speaking at one of the sessions to help to educate from a patient perspective. With each passing year, the ARDS Foundation has been able to help accomplish more and more, with education and

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1116728713601391062005-05-21T21:24:00.000-05:002005-05-21T21:25:13.603-05:00

I almost forgot to post the link to our newest addition to the website, the ARDS Foundation Slideshow. Check it out: http://ardsusa.com/slideshow.htm

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1116728559595638962005-05-21T21:19:00.000-05:002005-05-21T21:22:39.600-05:00

Paula and I are in San Diego for the American Thoracic Society's International Conference. We just arrived today and had to go over to the convention center to set up our booth and poster. We are hopeful this year because we have the best location that we have ever had. The more attendees (medical professionals) who visit our booth, the more people who know that we exist and then we are

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1116290607634583912005-05-16T19:33:00.000-05:002005-05-16T19:43:27.646-05:00

I had a check up today at my pulmonologist's office and he told me that they had a woman in the ICU who was seventy-seven years old and really, not expected to survive. Her oxygen levels were at 100% and her PEEP was 15. Still, in his ICU, if the family wants to continue care, they do. They put this woman on one of the new beds... he said it almost looks like a spaceship, it rotates the patient

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1115854786444505592005-05-11T18:35:00.000-05:002005-05-11T18:39:46.450-05:00

http://www.medscape.com/viewarticle/503922?src=mp From Medscape General Medicine™Webcast Video Editorials A Healthcare System That WorksPosted 5/6/2005 Karen Donelan, ScDOn a hot, Sunday afternoon last summer, a dear member of the family became increasingly weak and progressively

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1115501222893850682005-05-07T16:25:00.000-05:002005-05-07T16:27:02.896-05:00

ARDS Foundation Mini-Conference On August 13, 2005, the ARDS Foundation will host a mini-conference for the ARDS Community. The event will be held from 4 PM to 8 PM at the Deerfield Hyatt.Speakers will include physicians from Northwestern Memorial Hospital, as well as other medical professionals.

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com5tag:blogger.com,1999:blog-11848788.post-1115500850963341802005-05-07T16:19:00.000-05:002005-05-07T16:21:35.216-05:00

http://news.bbc.co.uk/2/hi/uk_news/magazine/4515711.stmThe big sleep By Tom Geoghegan BBC News Magazine What's it like waking up after 10 years "asleep"? After a New York fireman who barely said a word for a decade began talking profusely, what are the experiences of people who wake up from comas and vegetative states after long periods? "I want to talk to my wife," was Donald Herbert's first

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1115421824969574722005-05-06T18:21:00.000-05:002005-05-06T18:23:57.323-05:00

How far can rationing go??? Is this how people in a civilized world think? It is a sad state of affairs when humans will dipose of people because they they think that they are too old to 'repair.'They talk about having this standard..."justifiable clinical reason to not provide a treatment for certain age groups, not just older people, that will be O.K...." But how many times have we seen how

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com2tag:blogger.com,1999:blog-11848788.post-1115136302013130282005-05-03T11:04:00.000-05:002005-05-03T11:05:02.016-05:00

After 10 years, ex-firefighter recovers memory and speechBy ROBERT D. McFADDEN - The New York Times - 05/03/05 A former Buffalo, N.Y., firefighter who apparently suffered brain damage in a 1995 burning roof collapse and has since been virtually silent and nearly blind had a sudden unexplained recovery on Saturday, animatedly speaking to family and friends and trying to recover a lost decade.‘‘How

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1114526371969868122005-04-26T09:37:00.000-05:002005-04-26T09:39:31.970-05:00

I am told that the week of May 6th is National Nurses week. Why not do something for the wonderful nurses who took care of our loved ones, or us! Send them something nice, they work so hard to take care of others, they sometimes forget themselves. Lets remind them how special they are.My sister Marybeth was a nurse before we lost her to ARDS. I hold a very special place in my heart for these

Paula Bhttp://www.blogger.com/profile/05730719130814509523noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1114355847068080772005-04-24T10:15:00.000-05:002005-04-24T10:17:27.066-05:00

my birthday! I have to admit that this is the first year I am beginning to feel my age... (43) it is just little things but they exist. It has been almost ten years since I had ARDS. Perhaps it is all catching up with me...

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com3tag:blogger.com,1999:blog-11848788.post-1114147908521412442005-04-22T00:23:00.000-05:002005-04-22T00:31:48.523-05:00

After ARDS, I often find that sleep eludes me. Sometimes I am so tired and I may fall alseep early, but then, in the middle of the night, I lie awake. Of course, in the morning, I wake up tired and continue exhausted all day. I admit it is a big problem. And the strangest thing is that post ARDS, I have never had a nightmare even though initially, I had trouble falling asleep because I would have

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com2tag:blogger.com,1999:blog-11848788.post-1113655450192273512005-04-16T07:43:00.000-05:002005-04-16T07:48:50.916-05:00

HAMPSTEAD - A seventh-grade student at Hampstead Middle School designed and sewed a quilt as a tribute to Rick Taylor, a popular, well-respected maintenance man at the school, who died in January.With clothing and photographs secretly provided by Taylor’s widow, Terry, Molly McEachern, daughter of Kathy and Barry McEachern, created the quilt as a surprise gift for her friend and classmate, Tim

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com2tag:blogger.com,1999:blog-11848788.post-1113482475317111922005-04-14T07:36:00.000-05:002005-04-17T23:37:20.806-05:00

South Florida ARDS Fundraiser! http://www.ardsusa.com/MakeaDifference.htmKarapaloza will be May 14th at Quiet Waters Park in Deerfield Beach, Powerline Road between 10th Street and Hillsboro Blvd. (both are exits on 95).The benefit is from 10:00 am to 6:00 pm. All proceeds from the raffle to benefit ARDS Foundation in memory of Kristen Southon, whose young life was ended too early.Here is

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com3tag:blogger.com,1999:blog-11848788.post-1113314199044534602005-04-12T08:52:00.000-05:002005-04-12T08:56:39.046-05:00

I have to tell you a funny story. After we finally got all the bracelets in, I was excited to finally be able to send them out to everyone!Then I looked at how many I had to send! My daughter and I walked into the post office and the look on the man's face was, well priceless. Here I was with my box of envelopes. At least 30, all different weights, all going to different cities. He had to

Paula Bhttp://www.blogger.com/profile/05730719130814509523noreply@blogger.com2tag:blogger.com,1999:blog-11848788.post-1113272638947489902005-04-11T21:22:00.000-05:002005-04-11T21:23:58.946-05:00

http://www.ardsil.com/cgi-bin/ubbcgi/ultimatebb.cgi if you have not answered our online survey questions, check them out. I am hoping to present some of them (if I have enough responses) at ATS in May. Thanks!

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1113256581227998842005-04-11T16:54:00.000-05:002005-04-11T16:56:21.226-05:00

http://ardsusa.org/ARDS-Awareness.htm Check them out. Finally they have arrived and hopefully they will provoke conversation and some awareness!

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com2tag:blogger.com,1999:blog-11848788.post-1113143476024190222005-04-10T09:28:00.000-05:002005-04-10T09:31:16.026-05:00

I was at the cash station yesterday and could not believe that while trying to process my transaction, there were ads displayed... some before I could get to my desired page and others while I waited for the transaction to complete. There is no way to get away from it. I will say though that I have absolutely NO recollection regarding what those ads were for so at least for me, it was not

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1112995412878321882005-04-08T16:13:00.000-05:002005-04-08T16:23:32.880-05:00

This is something that I have noticed for years, the number of women who get ARDS right before or right after giving birth. I do not know the 'whys' of this, but it is something that I continually see. After hearing all of these stories, I felt compelled to see if there was any info relating to ARDS & pregnancy and I did find some. I never thought that when I was having kids, ARDS was a

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com7tag:blogger.com,1999:blog-11848788.post-1112907476917960032005-04-07T15:55:00.000-05:002005-04-07T16:01:40.783-05:00

The above remarks by US Health and Human Services Secretary Mike Leavitt, support the comment that an H5N1 infection of a 34 year-old physician at Vietnam-Sweden hospital in Quang Ninh led to the executive order of April 1, allowing the US to quarantine bird flu cases.The monitoring of the outbreak in the US has been elevated to a daily briefing, which almost certainly includes additional

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1112842898536305052005-04-06T21:49:00.000-05:002005-04-06T22:04:01.833-05:00

Prince Rainier, 81, of Monaco, has passed away from a lung infection. While no articles say that he had ARDS, it certainly sounds as though it could have been ARDS or ALI. Here is what one article said: "His Most Serene Highness Prince Rainier III died on Wednesday, April 6, 2005, at 6:35 in the morning (0435 GMT) at Monaco's Cardiothoracic Centre following broncho-pulmonary, cardiac and kidney

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1112840137102867492005-04-06T21:11:00.000-05:002005-04-06T21:16:35.986-05:00

Cold overwhelms baby with medical problem Community was pulling for 13-month-old boy with a rare disorder. But the baby who loved music and dancing, in the end, was killed by a cold. By Andrea Sudano Daily BreezeNicholas Burns, the El Segundo infant whose battle with a rare and deadly immune disorder sparked an outpouring of community support, has died.He was 13 months and 25 days old.Surrounded

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1112672575294727802005-04-04T22:40:00.000-05:002005-04-04T22:43:15.276-05:00

The Illini just lost :((((( To come so far, to keep making incredible comebacks within the game and then to lose... And on top of it, no Chief! Adding insult to injury.Well, they had a great run, and it was a lot of fun to watch them make their way to the last dance.

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1112650017122769312005-04-04T16:21:00.000-05:002005-04-04T16:27:39.530-05:00

Another study that evidences the seriousness of sepsis and pneumonia and the role that they play in deaths worldwide. As you know, many people, adults and kids alike, have sepsis and pneumonia as their precipitating causes to ARDS.http://www.jhu.edu/~gazette/2005/04apr05/04child.htmlSeventy-three percent of the 10.6 million child deaths worldwide each year are the result of six causes: pneumonia,

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1112582345255635142005-04-03T21:28:00.000-05:002005-04-03T21:39:05.256-05:00

Do you get Parade Magaine? In today's paper, the issue of Parade Magazine has an article about a group of physicians who serve at Brigham and Women's Hospitals new Division of Social Medicine and Health Inequities. The article lists ACUTE RESPIRATORY INFECTIONS as the highest killer worldwide, the number of deaths numbering 3.8 million. In second place, with 2.8 million deaths, is AIDS. After

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0tag:blogger.com,1999:blog-11848788.post-1112454676423467092005-04-02T09:08:00.000-06:002005-04-02T09:11:16.423-06:00

Today is the big day for Univeristy of Illinois' basketball team. Much anticipation. I spent seven years (college and law school) at U of I and my twin and two brothers also attended college there. I have endoctrinated my kids already. We will be watching tonight... how about you?

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com4tag:blogger.com,1999:blog-11848788.post-1112383157624603622005-04-01T13:16:00.000-06:002005-04-01T13:19:17.626-06:00

WOW a blog for ARDS... Got questions? I probably dont have all the answers...but we may have some...You will definitely find compassion here... Youre in the right place! Hopefully this site wont grow large out of necessity but out of interest....

ToniRockhttp://www.blogger.com/profile/07715305614217316556noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1112362773575368562005-04-01T08:20:00.000-06:002005-04-01T08:21:16.343-06:00

I used to always look around me to see if anyone has a trach scar. I once said something to my pulmonologist that I never see anyone with the tell tale 'hole in the neck' and he said, "I see them all the time!" Duh. It is his patient practice. I think in the almost ten years since I have been out of the hospital, I have only seen a handful of trach scars. I used to obsess abut it, but then I

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com1tag:blogger.com,1999:blog-11848788.post-1112358412042358182005-04-01T06:22:00.000-06:002005-04-01T08:28:24.510-06:00

Welcome to the ARDS Blog, a place where people can find others who have been affected by ARDS, to comment on issues of the day, vent, talk, even find humor in all that has happened with their Acute Respiratory Distress Syndrome experiences. Even though there is a message board on the ARDS Foundation website, here we can comment on issues that come up and can be explored more deeply and on a

ARDS Survivorhttp://www.blogger.com/profile/09118472739030318555noreply@blogger.com0